Drs. de Boer gave a presentation on oxygen saturation of the retinal blood vessels at the 10th congress of the European Academy of Neurology (EAN). Her research shows that the oxygen saturation of RVCL-S patients is higher in the veins of the retina compared to healthy controls. The difference in oxygen saturation between arteries and veins was smaller in RVCL-S patients. This teaches us more about how retinopathy in RVCL-S can develop.

Researchers from the LUMC and Amsterdam UMC have published a new article about the biomarkers NFL and GFAP in RVCL-S. They measured the levels of these biomarkers in blood and cerebrospinal fluid and compared them with healthy controls. They found increased NFL values in (pre-)symptomatic RVCL-S patients. They also found an association between NFL and GFAP levels and the patients’ cognitive function. You can read the full article here.

In January the Leiden University Medical Center (LUMC) has organized three online RVCL-S patient meetings. The evenings were a great success! There were several short presentations about the RVCL-S research. There was also an opportunity for patients and family members to ask questions to the doctors and researchers of the LUMC. A short summary of what was discussed during the patient evenings can be found here (Dutch only).

Researchers at the LUMC have recently published about abnormalities in the eyes of RVCL-S patients. With OCTA (Optical Coherence Tomography Angiography) scans they evaluated the blood vessels of the retina. They found that their were less blood vessels present in RVCL-S patients compared to healthy controls. Click here for more information!

Researchers of the LUMC have visited the European Stroke Congress (ESOC) in Lyon. They gave a short presentation about their work on RVCL-S. By visiting international congresses they try to increase the awareness of RVCL-S worldwide.

Donate to support RVCL-S research in the LUMC. All help is appreciated and will go towards understanding RVCL-S and finding a treatment. Even small amounts can contribute towards (partially) funding our projects. Moreover, donations are often tax deductible. For more information click here.