News
Read more about the latest news about RVCL-S and our research! Our research group consists of internationally renowned doctors and researchers from various departments in the LUMC. In addition, we work together with researchers from the Netherlands and abroad. Via this website we want to keep patients and their families as well as other healthcare providers informed about our research into RVCL-S.
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Support our research!
Donate to support RVCL-S research in the LUMC. All help is appreciated and will go towards understanding RVCL-S and finding a treatment. Even small amounts can contribute towards (partially) funding our projects. Moreover, donations are often tax deductible. For more information click here.
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Review about RVCL-S
Physicians of the LUMC have published a new review about RVCL-S. They describe the key features of the disorder and the most common complications that can occur. The latest scientific insights abour RVCL-S are also being discussed. The review is published in the scientific paper Cerebral Circulation Cognition and Behaviour. You can read the full review here.
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New website
As of today, the new RVCL-S website of the LUMC is live! Information for patients, their relatives and care providers is bundled on this website. You can also find the latest news about the research into RVCL-S here.
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Irene de Boer received Dekkerbeurs for research into RVCL-S
Irene de Boer received a Dekkerbeurs from the Dutch Heart Foundation! With this prestigious grant she will continue performing research into RVCL-S.
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Eye abnormalities on OCT scans in RVCL-S
Researchers at the LUMC have recently published about abnormalities in the eyes of RVCL-S patients. With OCT (Optical Coherence Tomography) scans they evaluated the thickness of the retina. They found that the retina was thinner in RVCL-S patients compared to healthy controls. This already occurred in the absence of other abnormalities during ophthalmological evaluations. Click here for more information!
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Searching for treatment with new techniques
RVCL-S research is being financed by stichting Dioraphte. Prof. Terwindt and drs. de Boer were interviewed about this new study. The interview can be found on de website of Dioraphte (in Dutch).